To anybody who might see this, July in the states is disability pride month. As someone who’s past decade plus has been a journey towards understanding, accepting, and advocating for my psychological and physical disabilities and my whole life, aiding disabled family members, I want make it known that: the way many of us feel you can help us the most, is not by “pretending” we’re abled, like we’re just like everyone else, because we’re *not*
When disabilities are ignored, or treated as just “uniquely abled”, it falls on the disabled to maintain abled people’s comfort; to make our disabilities small, to not advocate for equity and the bettering of our lives in a supposedly equal society.
Equality is not equity.
Differences must be acknowledged, understood, and worked around *by abled people* for any true progress to be made.
Most people think this is government related. I know abled people as individuals can’t change that there’s little to no wheel chair access in their bustling city, that the sidewalks are cracked and filled with lips. An abled person can’t make public schools treat autistic kids with humanity, or children with memory-relates disabilities able to always have notes for their exams. They can’t make the employers stop firing us, or the government give us our right to marriage when living under SSI.
What I’m asking for is Empathy. True empathy. The kind that informs your beliefs, and actions. Talk to disabled people. Get to know them. I promise you, you have a disabled person in your family or social circle. Really be inquisitive about their experiences, struggles, and frustrations.
Acknowledge your privilege. Your ease of access to the world. Really sit in it. Absorb it. Your empathy will only grow. And when enough abled people do even just this, the world for us becomes less hostile. It becomes more livable. We become no longer burdens, but cherished by our communities, our families and friends. And trust me, even though the world is not built for me, and I have to consistently jump through 10,000 hoops to achieve even the smallest of victories for an abled person, and my body hurts and breaks down, so I get in a chair on wheels, or get out my cane, or put on my noise cancelling headphones, and just come across obstacle after obstacle -
The majority of the pain comes from the stares. The glances. The questioning. The points when you see the patience leave the eyes of the one who you thought loved you unconditionally, and you remember your place in our collective culture. And fuck man. You recall how workable all the bureaucracy and hurdles felt, how manageable it was to push forward (it’s what you always do) … before you were reminded of where you sit on the totem poll, and how conditional worth is in our society.
Disabled people are worthy. We are valuable. But we need you to believe it, or nothing will ever change.
